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Advance Directives

Caring Connections Advance Directives Forms Library

Source: Caring Connections, a program of the National Hospice and Palliative Care Organization

Description:

Caring Connections is a program of the National Hospice and Palliative Care Organization. As a public service, Care Connections provides free online access to advance health care planning information and forms for New York and the other forty-nine states.


Medical Orders for Life-Sustaining Treatment (MOLST)

Source: NYSDOH

Description:

Honoring patient preferences is a critical element in providing quality end-of-life care. To help physicians and other health care providers discuss and convey a patient’s wishes regarding cardiopulmonary resuscitation (CPR) and other life-sustaining treatment, the DOH as approved form (DOH-5003), Medical Orders for Life-Sustaining Treatment (MOLST), which can be used statewide. MOLST is intended for patients with serious health conditions who:

  • Want to avoid or receive any or all life-sustaining treatment;
  • Reside in a long-term care facility or require long-term care services; and/or
  • Might die within the next year.

New York Health Proxy Form

Source: New York Department of Health

Description:

This online resource page provides background on your advance directives options in New York, as well as links that open downloadable and printable versions of the New York Health Care Proxy form in English, Spanish, Chinese, and Russian.

Advocacy

Long Term Care Ombudsman

Source: New York State Office of Long Term Care Ombudsman

Description:

The Office of the Long Term Care Ombudman serves to protect the the health, safety, and rights of persons receiving care in nursing facilities and other senior care facilities. The program functions in large part through the work of trained volunteers who work to educate and empower residents of care facilities and to investigate and help resolve complaints when they arise. There is a network of local Ombudman offices throughout New York State. To locate the office in your local Ombudsman office, visit the program’s website or call the Senior Citizens Help Line, 800-342-9871

Alzheimer’s Disease & Dementias

Alzheimer’s Resource List

Source: New York State Office for the Aging

Description:

This list includes regional and local resources on Alzheimer’s, including Alzheimer’s Disease Assistance Centers, Alzheimer’s Disease Community Service Programs, and websites for people with Alzheimer’s Disease and their families.


Alzheimer’s Association

Source: Alzheimer’s Association

Description:

The Alzheimer’s Association leads the way to end Alzheimer’s and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.


Lewy Body Dementia Association

Source: LBDA.org

Description:

LBD is a multi-system disease and usually requires a comprehensive treatment approach with a collaborative team of physicians and other health care professionals like occupational, physical or speech therapists. Early diagnosis and treatment may extend your quality of life and independence.


Vascular Dementia

Source: Alzheimer’s Association

Description:

Vascular dementia is a decline in thinking skills caused by conditions that block or reduce blood flow to various regions of the brain, depriving them of oxygen and nutrients.


Frontotemporal Dementia (FTD)

Source: Alzheimer’s Association

Description:

Frontotemporal dementia (FTD) or frontotemporal degeneration refers to a group of disorders caused by progressive nerve cell loss in the brain’s frontal lobes (the areas behind your forehead) or its temporal lobes (the regions behind your ears).


Parkinson’s Disease Dementia

Source: Alzheimer’s Association

Description:

Parkinson’s disease dementia is a decline in thinking and reasoning skills that develops in some people living with Parkinson’s at least a year after diagnosis.


Creutzfeldt-Jakob Disease (CJD)

Source: Alzheimer’s Association

Description:

Creutzfeldt-Jakob disease (CJD) is the most common human form of a group of rare, fatal brain disorders known as prion diseases.

Consumer Protection

Consumer Protection Hotline

Source: New York State Office of the Attorney General
Phone: 1-800-771-7755

Description:

This is a good number to start with if you feel you have been the target of a consumer scam or fraud.


Complaint Hotlines for Long Term Care

Adult Home Complaint Hotline: 866-893-6772
Home Care/Hospice Hotline: 800-628-5972
Nursing Home Abuse Hotline: 888-201-4563

 

Financial Questions

Applying for Benefits

Source: Office for the Aging

Description:

Many New Yorkers are eligible for a variety of federal, state, and local benefits that can put cash in their pockets, help pay for prescriptions, food, and heat, reduce their taxes, and help pay for their care. Learn how to sign up by watching these easy-to-follow videos.


Financial Assistance Support through NYSPLTC

Source: New York State Partnership for Long-Term Care

Description:

This program helps New York residents prepare financially for the possibility that they will need home care, assisted living support, or care in a nursing home at some point in the future. The program provides financial support for the purchase of long-term care insurance as well as certain protection of assets in the event care becomes needed.


HIICAP Hotline

Source: Health Insurance Information Counseling and Assistance Program
Phone: 1-800-701-0501
Phone TDD/TTY:

Description:

Every state has a SHIP (State Health Insurance Assistance Program). In New York, our program is Health Insurance Information Counseling and Assistance Program, or HIICAP. HIICAP serves older New Yorkers through its local offices. Its mission is to provide education, counseling, and other one-on-one assistance regarding Medicare, Medicaid, managed Care, EPIC (Elderly Pharmaceutical Insurance Coverage), and other health insurance issues and questions.

Information & Referral

Directory of Local Offices for the Aging

Source: New York State Office for the Aging

Description:

This is your gateway for accessing local programs and services for older adults and caregivers. Each local office listing includes address, phone numbers, and link to the local office website. You may also obtain contact information for your local office on aging by calling the Senior Citizens Help Line, 800-342-9871.


New York Senior Citizen’s Resource Guide

Source: New York State Office for the Aging

Description:

Online listing for programs and resources for older adults in New York State. This is a good source for contact information for local offices and organizations serving seniors.

Insurance Questions (including Medicaid & Medicare)

HIICAP Hotline

Source: Health Insurance Information Counseling and Assistance Program
Phone: 1-800-701-0501
Phone TDD/TTY:

Description:

Every state has a SHIP (State Health Insurance Assistance Program). In New York, our program is Health Insurance Information Counseling and Assistance Program, or HIICAP. HIICAP serves older New Yorkers through its local offices. Its mission is to provide education, counseling, and other one-on-one assistance regarding Medicare, Medicaid, managed Care, EPIC (Elderly Pharmaceutical Insurance Coverage), and other health insurance issues and questions.


New York State Medicaid Website

Source: New York State Department of Health

Description:

This is the Department of Health’s online information source for questions about Medicaid if you live in New York State. The page covers eligibility requirements, how to apply, what health services are covered, and what co-payments are required, and many other questions regarding Medicaid in New York State.

Nursing Home Compare

Nursing Home Compare

Source: medicare.gov

Description:

Find and compare Medicare-certified nursing homes based on a location, and compare the quality of care they provide and their staffing. A nursing home is a place for people who can’t be cared for at home and need 24-hour nursing care.

Nursing Home Checklist

Print a copy of the Nursing Home Checklist when you visit each nursing home. This list will be an essential tool in asking questions about resident life, nursing home living spaces, staff, residents’ rooms, hallways, stairs, lounges, bathrooms, menus & food, activities, safety, and care.

  • Use a NEW checklist for each nursing home you visit.

Senior Safety at Home

Check For Safety: A Home Fall Prevention Checklist for Older Adults

Source: CDC / STEADI

Description:

Use this checklist to find and fix hazards in your home.


Patient & Caregiver Resources

Source: CDC / STEADI

Description:

Falls affect us all, whether personally or someone we love or care about. Every second of every day, an older adult falls. Every year, more than one in four older adults reports falling, and about 41,000 older adults die as a result of a fall–that’s 112 older adults every day. There are simple steps you can take to prevent falls and decrease fall risks. CDC developed the STEADI (Stopping Elderly Accidents, Deaths & Injuries) initiative, which includes educational materials and tools to improve fall prevention.


Home Safety Tips for Older Adults

Source: healthinaging.org

Description:

Tip Sheet: Home Safety Tips for Older Adults

Your Rights

Long Term Care Ombudsman

Source: New York State Office of Long Term Care Ombudsman

Description:

The Office of the Long Term Care Ombudman serves to protect the the health, safety, and rights of persons receiving care in nursing facilities and other senior care facilities. The program functions in large part through the work of trained volunteers who work to educate and empower residents of care facilities and to investigate and help resolve complaints when they arise. There is a network of local Ombudman offices throughout New York State. To locate the office in your local Ombudsman office, visit the program’s website or call the Senior Citizens Help Line, 800-342-9871


Your Rights as a Nursing Home Resident in New York State

Source: Health.ny.gov

Veterans

NYS Department of Veterans’ Services

Source: veterans.ny.gov

Description:
Get help from an advisor by scheduling an online, phone, a video consultation, or find an office to make an in-person appointment.

Veterans Affairs

Source: US Department of Veterans Affairs

Description:
Whether you’re a Veteran, service member, or family member, get the care and benefits you deserve.

Elderly Veterans

Source: US Department of Veterans Affairs

Description:

The Department of Veterans Affairs (VA) will provide benefits and services that address a variety of issues, including the changing health risks they face, as well as financial challenges through VA benefits and health services.


NY Connects

Source: NY Connects

Description:

NY Connects is your trusted place to go for free, unbiased information about long-term services and supports in New York State for people of all ages or with any type of disability.


Department of Veterans’ Services

Source: NYC Department of Veterans Services

Description:

Providing New York City’s Veterans with essential services and programs focused on pivotal areas such as economic empowerment, housing security, benefits, health and wellness, and culture.


New York State Veterans’ Nursing Homes

Source: veterans.ny.gov

Description:

The New York State Veterans’ Homes are skilled nursing facilities owned and operated by the New York State Department of Health (DOH) and State University of New York (SUNY) for Veterans and their dependents. They exist to provide quality care to all eligible Veterans and dependents in need of skilled nursing care and rehabilitative services.

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